Wednesday, July 27, 2016

Kidney disease runs in the family ~ I wish I could run from it

I didn't post anything today because I was "out of town" for a while, and away from my computer.

My husband, Ralph, and I spent more than seven hours at the transplantation clinic at Yale-New Haven Hospital. 

We learned about kidney transplants, nutrition, medications, and had private consultations with several health professionals. 
I had an EKG and chest X-ray and gave what seemed like a lot of blood, twice.

I have PKD - Polycystic Kidney Disease - which is an unfortunate family trait. I wrote about it here in October, and again here in February. 

Two wonderful people have offered to give me a kidney, but we have no idea if either of them will be able to do so.

My nephrologist referred me to the Yale clinic to get started on a journey that I know many, many people have taken before.
There were more than 17,000 kidney transplants performed in the United States in 2014, which is a much bigger number than I had thought.

In March I published a month of posts to help raise awareness of PKD. I hope it did.

Ralph and I now are armed with more information and a better sense of what this journey will eventually entail.

It's not easy to write about myself. I take that back...it's easy to write, just not easy to hit the "publish" button. But I'm about to do so.

Thanks for reading.




1 comment:

  1. Patti, I just read this. My newsfeed gets away from me. God bless you. My prayers are with you. I hope you find a match soon. I'd offer to be tested but my kidneys aren't the greatest so I doubt they'd let you have one even if they matched. I will keep praying.

    Rosalie

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