This biker event at the Valley Diner will help support Eva (the Diva) Grace Kelly, 5, of West Haven who lives with SMA, spinal muscular atrophy.
It will also help raise awareness for the rare genetic disorder for which there is no treatment or cure.
I found this story (below) posted on a Facebook page for Eva. I wrote it several years ago.
Unfortunately I didn't get to meet Eva that day, she was asleep in her bedroom during the interview with her parents.
