Showing posts with label bike night. Show all posts
Showing posts with label bike night. Show all posts

Wednesday, June 7, 2017

Annual Bike Night at Valley Diner in Derby to benefit West Haven child


Eva Grace Kelly of West Haven suffers from Spinal Muscular Atrophy, a rare neuromuscular disorder. 

Sharing from the Facebook page of Missy Lombardo Kelly, Eva's mom:

"Now that Eva's handicap van is FINALLY paid off, we need to move on to bigger things. Our next goal is to raise money towards the out of pocket cost to have Eva's ceiling lift put in our home to safely move her from her bed into the tub.

"Although insurance covers most of it, there is a cap on what they will pay leaving us with a balance of $3,800. After that expense is covered, we're looking into expanding Eva's bedroom to allow for extra room for equipment and supplies."


Friday, July 1, 2016

Bike night planned Tuesday at Valley Diner in Derby to benefit West Haven child


DERBY - A bike night to support Eva Grace Kelly will be held at 6 p.m. Tuesday at the Valley Diner, 636 New Haven Ave.

Eva Grace  Kelly, 5, of West Haven has SMA, a very rare genetic neuromuscular disease for which there is no treatment or cure. 

The fundraiser is hosted by 203 Riders Group. The event will not only raise funds but will also raise awareness of SMA.

Check out my friend Pam McLoughlin's great story about Eva in the New Haven Register.






Tuesday, May 10, 2016