Saturday, September 4, 2021

Today is PKD Awareness Day

I'm posting this as someone who inherited Polycystic Kidney Disease and is forever grateful to have received a healthy kidney from an altruistic donor. 






From the PKD Foundation website:

A typical kidney is the size of a human fist and weighs about a third of a pound. 

Polycystic kidneys can be much larger, some growing as large as a football. 

Kidneys can develop cysts ranging in size from as small as a pinhead to as large as a grapefruit.

There are two types of genetic PKD:

ADPKD
autosomal dominant

ADPKD is the more common type of PKD and is estimated to affect more than 600,000 Americans and 12.4 million people worldwide.

ARPKD
autosomal recessive

ARPKD is a rare form of PKD that occurs in 1 in 25,000 children worldwide.

There is no cure. But with the first treatment for ADPKD approved in 2018 and ongoing clinical trials, there is hope.



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