I'm sharing because Saturday is a meaningful day for me and my husband, Ralph, since he suffers from this debilitating disease.
Although it's hereditary he is the only one of seven siblings to be afflicted.
Thankfully Ralph's five sisters and one brother escaped it.
Over the years people have asked why Ralph needs to use a wheelchair. Many assume he was in an accident.
But no, the truth is he has a progressive disease that brings with it a whole different, unique way of life.
Raising awareness is always a good thing to do.
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